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Conference Calls: Lifespan Respite Grantee/Partner
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Lifespan Respite Grantee/Partner Teleconferences
For Archived Webinars, click here.
Other Grantee/Partner Calls Respite Voucher Collaborative Calls Sustainability Learning Collaborative Calls |
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2019-2020 Webinars
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Call Description:
Many statewide Lifespan Respite grantees and partners are interested in increasing the availability of and connecting family caregivers to volunteer respite providers. Learn how to support the development of evidence-based/evidence-informed statewide initiatives to increase the availability of trained volunteers provided by faith, community and grassroots groups through training and technical assistance, resources and funding. Identify core components to support community partners to be impactful with their volunteer respite efforts. Walk through the process of preparing organizations to meet the needs of caregivers cross age and cross disability from pre-contemplation to implementation and sustainability of volunteer respite programs.
On the programmatic level, we have discussed in previous calls, how many of you are offering respite provider training. To assist Lifespan Respite grantees to successfully provide technical assistance to community-based partners to help them provide volunteer respite, this webinar will focus on issues beyond volunteer training, including the importance of identifying strategies for successful volunteer recruitment and retention; planning for and engaging in ongoing supervision and support of volunteers to ensure their long-term commitment; and learning about the importance of matching volunteers to care recipients and their families.
Presenter:
MaryJo Alimena Caruso, currently with the FRIENDS National Resource Center, has years of experience in volunteer respite programming and evaluation. For more than 15 years, she ran a very successful volunteer respite program in western PA. MaryJo also oversaw Pennsylvania’s statewide TakeFIVE initiative, an outgrowth of PA’s Lifespan Respite Care grant. It was funded by the PA Dept of Health in collaboration with the Institute on Disabilities at Temple University to recruit & train faith and community-based organizations to provide volunteer respite for families of children with special health care needs. MaryJo also founded the PA Respite Coalition in 1998 and is still actively engaged with the Alliance for Respite Care in western PA.
Resources:
ARCH Volunteer Respite Manual (contact ARCH for hard copy)
Lifespan Respite State Tools for Volunteer Respite
Click here to listen to or download the call recording. Duration of recording: 1 hr
Please provide feedback to this teleconference by completing this quick online survey.
Call Description:
Respite care and crisis nurseries have been shown to be part of effective strategies to strengthen families and prevent abuse and neglect. This is especially important in light of the growing opioid epidemic and the increasing number of affected children and families. September is Kinship Caregiver Month, providing a backdrop to recognize the increasing number of grandparents and relative caregivers stepping in to care for these children and keep them out of the foster care system.
This call provided information about the new Family First Prevention Services Act that seeks to revamp the foster care system, provide a new focus on prevention in light of the opioid crisis, and provide new supports to kinship caregivers. The call also highlighted other private and public funding sources for child abuse prevention programs, how these programs can help support you in your work to provide respite across the lifespan, and how we can support their efforts to link families to critical respite services.
Guest Presenters
Jaia Lent, Deputy Director for Generations United spoke about the new Family First Act and the provisions that will assist families you may be supporting. The Family First Act will fund evidence-based prevention services in the areas of substance use prevention and treatment, mental health and in-home parenting skill based programs and participants explored how respite might support these initiatives. Jaia also described how the Act will expand Kinship Navigator Programs and how Lifespan Respite grantees and State Respite Coalitions can be helpful to navigators in linking kinship providers to respite services.
Amy Knapton Vega, MSW, Executive Director, Vanessa Behan Crisis Nursery, Spokane, WA described the services provided by the nursery, the families served, and how they have sustained their services for more than 20 years. She also described their involvement with Lifespan Respite Washington and how other state Lifespan Respite programs might reach out to similar services in their states.
Jessica Jackson, Program Manager, Community-based Child Abuse Prevention Program (CBCAP), Alabama Children’s Trust Fund shared how they use CBCAP funds to support respite for children in Alabama. Respite is identified as a core prevention service in CBCAP. To read more about CBCAP, see Child Welfare and Child Abuse Prevention Programs in ARCH’s Federal Funding Opportunities Guide.
Resources
Fact Sheet Family First Prevention Services Act
Kinship Care Navigator Programs. More kinship care resources at Grandfamilies.org
Community-Based Child Abuse Prevention Program Lead Agencies
ARCH List of Crisis Nursery Programs in the U.S.
Nine Steps to Respite for Grandfamilies Fact Sheet
Looking Beyond Federal Funding: Examples of State Funding for Respite, July 18, 2018
Click here to listen to or download the call recording. Duration of recording: 1 hr 17 minutes
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Call Description:
What do we know about state funding for respite? Here are a few examples of states that are successfully using state resources to support respite for families across the lifespan:
Nebraska, Wisconsin and Texas have passed and funded State Lifespan Respite legislation. Ongoing advocacy is needed to maintain them.
A few state respite coalitions have been very effective over the years in developing partnerships with state agencies to encourage use of state funds for respite (AL, IL, TN).
Some state Lifespan Respite grantees have used their Lifespan Respite funds to leverage new dedicated state dollars for respite through state legislative strategies (CO, SC).
Other states, such as Maryland, New Jersey, and South Dakota have had long-standing state funded respite initiatives.
This interactive call provided the opportunity to hear from states that have dedicated resources for respite beyond or in lieu of federal funding streams. Peggy Spaulding, CO Lifespan Respite Program, Anne Wolf, SC Lifespan Respite program, Lisa Schneider, WI Respite Care Association, and Dorinda Adams, MD Lifespan Respite grantee kicked off the discussion by describing their state’s funding stream; how funds are used and their role in administration of these funds; strategies to secure the funding (e.g., legislative, coalition advocacy, state agency champion); how funding is sustained; and why these particular state funding resources were targeted to support Lifespan Respite activities.
Resources
Colorado Respite Care Task Force, Final Report, 2016
South Carolina Take Another Break! State Respite Plan, February, 2018
Contact List for States with State Funding Support for Lifespan Respite Activities
The Nuts and Bolts of Voucher Respite, May 16, 2018
Click here to listen to or download the call recording. Duration of recording: 1 hr 28 minutes
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Call Description: In implementing a respite voucher program, States use a variety of delivery and reimbursement systems, target different populations, and define provider eligibility differently. This call will provide an opportunity for network members to discuss different approaches. Linda Porter from Lifespan Respite Washington and Elle Billman from the Colorado Respite Care Program will facilitate a peer-led informal cafƩ call to allow grantees and partners to share successes, challenges, implementation strategies, and tools/forms used.Resources
State Lifespan Respite Voucher Tools (includes recently posted new tools from NE and NC)
Lifespan Respite Voucher Guidance
Feel free to browse workshop presentations from past National Lifespan Respite Conferences for presentations on voucher respite initiatives.
Previous recorded teleconferences on voucher respite
Getting Creative with State Partnerships in Lifespan Respite, January 17, 2018
Click here to listen to or download call recording. Duration of Recording: 1 hr and 12 min
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Presenters:Call Description: During the teleconference, Linda Porter and Hilarie Hauptman from WA State discussed their collaborative work with eight Tribes on an innovative opportunity through a Tribal Respite Grant to develop culturally relevant respite services for Tribal kinship caregivers. They are implementing respite models in collaboration with newly funded Tribal Kinship Navigators. In addition, a collaborative relationship with the Washington State Department of Health (DOH) resulted in a multi-year innovative program to provide respite vouchers for families of children being served through the Children with Special Health Care Needs (CSHCN) program.
Resources
Providing Emergency Respite, Sept 13, 2017
Click here to listen to or download call recording. Duration of Recording: 1 hr and 15 min
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Presenters:
Call Description:
One of the required uses of funds for a Lifespan Respite grant is providing planned and emergency respite. However, despite the demonstrated need for emergency respite in many states, providing it can present challenges given the immediacy of needs, the potentially high cost, the shortage of willing providers, and state regulations or respite provider requirements that may make emergency respite difficult to provide.
Two Lifespan Respite grantees will provide brief remarks regarding their efforts to provide emergency respite. Pam Oliason, the Idaho Lifespan Respite grantee, will share a brief description of and lessons learned from their implementation of a pilot Lifespan Emergency Caregiver Respite Program in partnership with the Idaho Federation of Families for Children’s Mental Health. Dorinda Adams, Lifespan respite grantee from Maryland, will describe their recently launched consumer-directed emergency respite program that includes contracting with a state-wide provider to make respite workers available 24/7 if families have no other options.
Resources:
Successful Coalitions: An Ongoing Process of Self-Assessment, July 19, 2017
Click here to listen to or download call recording. Duration of Recording: 1 hr and 27 min
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Presenters:
Call Description:
This call provided an opportunity for Lifespan Respite grantees and partners to share successes and challenges in engaging members in their state respite coalitions, in defining and redefining the coalition role in Lifespan Respite activities, in structuring the coalition, in sustaining coalition leadership, and in planning for the future. You are not alone if you struggle with any of these issues. Even successful coalitions face challenges when someone leaves, when leadership changes, when state policies or supports shift, when funding ends, or when competing interests are hard to overcome.
Two leaders from successful coalitions, Meghan Kluth with the CO Respite Coalition and Kathy Mayfield Smith, President and Co-founder, SC Respite Coalition shared their perspectives on what makes their coalitions work, how they are structured, and how they have overcome challenges and planned for the future.
Resources:
Click here to listen to or download call recording. Duration of Recording: 1 hour 25 min
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Presenters:
Call Description: This call will introduce lifespan respite grantees and partners to resources on cultural diversity. On this call, experts from National Consortium on Aging Resources for Seniors' Equity, a consortium of five national resource centers in the aging network (see above) shared their expertise and resources on culturally relevant approaches to service delivery specific to the populations they serve. The call focused on soliciting grantees' and partners' training and technical assistance needs in this area.
Discussion Questions:
1) Do any Lifespan Respite programs have any ongoing work with American Indian / Alaska Native, African American / Black, Asian American and Pacific Islander (AAPI), Hispanic, or LGBT communities?
2) What resources would be helpful to aid Lifespan Respite programs in connecting with diverse populations (e.g. webinars, fact sheets, toolkits)?
3) Do any Lifespan Respite programs have any contacts with Indian Health Service (IHS)?
4) Have any of you had experience introducing the concept of respite care into hard-to-reach urban/rural dwelling families that traditionally look towards family members and close friends to care for a loved one (e.g. African American, AAPI families)? If so, what strategies were most successful?
5) What strategies have Lifespan Respite programs found helpful in connecting with limited- English proficient communities?
Resources:
Fact Sheet from the National Consortium on Aging Resources for Seniors' Equity
Sharing your Vision for Lifespan Respite, a conversation with Kevin Foley, ACL, November 30, 2016
Click here to listen to or download call recording. Duration of Recording: 1 hour 21 min
Discussion Questions:
The purpose of the teleconference was to continue the discussion with Kevin Foley, ACL, begun at the Lifespan Respite Grantee and Partner Learning Symposium in Denver last September, share additional thoughts with the group as a whole, and provide an opportunity for those who were unable to attend the Learning Symposium to offer their input into the future implementation of the Lifespan Respite Program and the structure and content of the Lifespan Respite Care Program Funding Opportunity Announcements. Notes from the discussion on September 23, 2016 can be found here.
The discussion centered on these questions:
1. What did you like about the past Lifespan Respite Funding Opportunity Announcements (FOAs) from ACL (scroll down on this page to see archived FOAs)?
2. What changes in content or format would you like to see in future FOAs?
3. If you received a new Lifespan Respite Care Program award, what would you do with it?
4. What is your vision for the future of the Lifespan Respite Care Program?
Using Technology to Implement and Sustain Lifespan Respite Activities, July 13, 2016
Click here to listen to or download call recording and see screen shares. Duration of Recording: 1 hour 27 min
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Presenters:Call Description:
Most of us rely on technology – cell phones, websites, YouTube, internet registries and calendars, apps – to just get through the day. Some State Lifespan Respite grantees and their partners are expanding the way they use these tools to help implement Lifespan Respite activities, including data collection, resource sharing, messaging, provider training, and more! Lifespan respite grantees will share some innovative ways they have looked to technology to help expand their reach, improve the quality of their activities, and embed respite and caregiver information that can be more easily sustained.
Opportunities from the Corporation for National and Community Service (CNCS) to Expand and Support Respite, March 30, 2016
Click here to listen to or download call recording. Duration of Recording: 1 hour 25 min
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Presenters:
The Corporation for National and Community Service (CNCS) is a federal agency that engages more than five million Americans in service through its AmeriCorps, Senior Corps, Social Innovation Fund, and Volunteer Generation Fund programs, and leads the President's national call to service initiative, United We Serve. Each presenter provided a brief description of their state or local initiative using funds or volunteers from the CNCS to provide respite and caregiving support services or to support their state respite coalition.
Resources:
1) Corporation for National and Community Services (CNCS) website: Nationalservice.gov
2) Funding Information: Different states have different structures, so the first step in the process would be contacting your state CNCS office to get more direction. A list of contacts for each state can be found at: http://www.nationalservice.gov/stateoffices
3) CNCS Evidence Exchange and Performance Measurement Information
3) Federal Funding and Support Opportunities for Respite - Building Blocks for Lifespan Respite Systems, 2015. See especially the section of the report on Programs Serving Multiple Age Groups covering the National Senior Service Corps [Senior Companion Program (SCP), Foster Grandparent Program (FGP), Retired and Senior Volunteer Program (RSVP)], and AmeriCorps.
4) Legacy Corps is a branch of AmeriCorps - Legacy Corps Background and Legacy Corps Supporting Veterans and Military Families
Legacy Corps Program Contact:
Jack Steele
University of Maryland
Department of Health Services Administration
3310E - SPH Bldg. #255
College Park, MD 20742
Telephone: 607-865-7980
Fax: 607-865-8937
Email: jacksteele73@gmail.com
4) VISTA Resources
AmeriCorps VISTA website
Sponsor guide, which explains the whole process from applying to utilizing a VISTA volunteer
Including Diverse Stakeholders in Lifespan Respite, January 27, 2016
Click here to listen to or download call recording. Duration of Recording: 1 hour 27 min
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Presenters:
Website: www.paralysis.org
Website: www.nmss.org For services in your area.
Speakers discussed the special respite needs of the populations they serve and how respite helps families affected by MS and paralysis. Ms. Mauro discussed the resources that the Paralysis Resource Center has to offer to help you serve individuals with paralysis and their families and engage them in lifespan respite activities and coalitions at the local level. Ms. Weidner and Ms. Kenneth discussed how and why local chapters of the National MS Society became actively involved and have remained engaged in many state respite coalitions and state Lifespan Respite activities, using the Virginia Caregiver Coalition as an example of active MS Society involvement. Call participants then discussed strategies for and challenges of increasing diverse partnerships in their own state efforts.
Respite Theme for 2015 National Family Caregivers Month, Wednesday, July 22, 2015
Click here to listen to or download call recording. Duration of Recording: 1 hour
Call Description:
Lisa Winstel with the Caregiver Action Network discussed how and why Respite was selected as the theme for November 2015 National Family Caregivers Month. She shared plans for tools and proclamations that will be made available in early Fall for use by the public and the media. Amy Nazaire, Lifespan Respite grantee from MA and Jennifer Abernathy, TN Respite Coalition, discussed the ways they have commemorated National Family Caregivers Month in the past, with nuts and bolts descriptions of how to prepare and hold events and seek state proclamations.
Click here to listen or download call recording. Duration of Recording: 1 hr 21 minutes.
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Call Description:
In this networking session, each state Lifespan Respite grantee or partner shared their current Lifespan Respite grant-related activities and most recent accomplishments, with a focus on activities undertaken to enhance or support their statewide respite infrastructure. The presentations were followed by discussion and Q&A.
Responding with State Strategies to Engage Employers, Conversation with Grace Whiting, National Alliance for Caregiving, April 22, 2015
Click here to listen to or download call recording. Duration of Recording: 1 hr 24 minutes
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Call Description:
Grace whiting shared updates on the National Alliance for Caregiving’s Champions Coalition Grantees to show how local communities are raising public awareness about the needs of working caregivers. This discussion flows from the previous week’s ARCH webinar on Caregivers in the Workplace and provided an opportunity to share Lifespan Respite's efforts/work/plans for engaging employers and the community in respite and caregiving support for employed caregivers.
With support from Pfizer, NAC awarded 8 mini-grants to caregiving coalitions interested in highlighting the challenges facing family caregivers at work. Each coalition has or will lead an event in 2015 that recognizes a Champion of family caregiving issues and identifies the needs of family caregivers balancing work and care in diverse communities across the country. List of NAC’s 2015 Working Family Caregivers Champions Grantees
See also ARCH Webinar on Engaging Employers in Lifespan Respite with members of ReACT. ReACT resources available at this link.
Fundamentals of Developing and Implementing Voucher Respite (Part 2), March 11, 2015
Click here to listen to or download call recording. Duration of Recording: 1 hr 34 minutes
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Call Description: Several grantees and partners described the basic considerations for developing a respite voucher program and the mechanics of implementation. They addressed the following issues:
Training and Recruitment of Respite Providers and Volunteers – Examples from State Lifespan Respite Grantees and Partners, January 28, 2015
Click here to listen to or download call recording. Duration of Recording: 1 hr 1 minute
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Call Description: Short presentations were made by Jim Schroeder, Respite Care Association of Wisconsin and Brandi Mason, Alabama Lifespan Respite Network. They described the respite provider/volunteer training curriculum they are using, the training format (e.g. online, in-person, etc), who is eligible to participate, and outreach and recruitment strategies. Participants shared their own resources, success and challenges with developing and implementing respite provider recruitment and training strategies.
The Fundamentals of Developing and Implementing Voucher Respite, July 10, 2014
Click here to listen to or download call recording. Duration of Recording: 1 hr 15 minutes
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Call Description: Some state lifespan respite grantees and/or state respite coalitions or other primary partners have implemented a one-time voucher program or have been delivering respite assistance via vouchers for some time. Other states are just beginning to explore the options for voucher systems that might work in their states. The purpose of the call is to provide the opportunity for state grantees and partners to share their successes and challenges in advancing voucher respite.
Ellen Nau, VA Lifespan Respite grantee, Virginia Department for Aging and Disability Services, and Kathy McKeon, Catholic Diocese of Providence, RI, and a partner in the RI Lifespan Respite grant, will present their states’ experiences developing and administering respite voucher programs.
Resources:
State Guidance on Respite Vouchers, click here.Planned and Emergency Respite Service/Voucher Delivery Tools, click here, including tools from the VA Respite Voucher Program and from the RI CareBreaks voucher program, as discussed by presenters.
Linking Lifespan Respite to your State’s Long-term Services and Supports (LTSS) Initiatives, June 9, 2014
Click here to listen to or download call recording. Duration of Recording: 1 hr 16 minutes
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Call Description: Some state Lifespan Respite Programs have begun collaborating with their state Medicaid program to embed respite or family caregiver supports in new Medicaid Waivers, Money Follows the Person demos, the Balancing Incentives Program, Managed Care, state plan options such as 1915 (i) or other initiatives. Others are working collaboratively with local Veterans Affairs programs or other programs/agencies engaged in long-term services and support efforts. The purpose of the call was to provide the opportunity for state grantees and partners to share their successes and challenges in advancing respite in LTSS systems. Tammy LeBlanc with the Louisiana Lifespan Respite program and Jane Byrnes with the Ohio Lifespan Respite program shared their efforts to date.
Resources:
Marketing Respite to Family Caregivers: Examples from State Lifespan Respite Initiatives, January 9, 2014
Click here to listen to or download call recording; Duration of Recording: 63 minutes
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Call Description: Strategies for marketing respite to family caregivers was raised as an area of interest on the last Lifespan Respite Grantee/Partner call in November. This call focused on examples from states about marketing, education and public awareness campaigns that state lifespan respite grantees and their coalition partners have engaged in to raise awareness about the importance of respite. Presenters included Cheron Brylski, a marketing consultant who works with the Lifespan Respite project in Louisiana, and Joyce Pohlman with the TX Lifespan Respite Project who discussed their Take Time Texas campaign. The following issues were discussed:
A working group was formed to investigate the feasibility and desirability of a national respite marketing campaign, and to explore additional tools that ARCH might provide to assist states in developing their own campaigns. If you are interested in serving on this working group, please contact Jill Kagan.
Resources:
Discussion on Lifespan Respite Programs with Greg Link
November 7, 2013
Click here to listen or download recording
Duration of Recording: 1 Hour, 24 Minutes, 12 Seconds
Recording File Size: 29 MB
Discussion Questions:
1. To what extent is the Lifespan Respite Project in your state involving the broadest range of stakeholders from across the age and disability spectrum?
a) What have been barriers to realizing full participation from across the age/disability spectrum?b) How can future funding opportunities in Lifespan Respite enable you to overcome these barriers?
c) or Share your ideas and approaches for addressing these barriers.
2. Please expand on any ideas you may have for ways in which the Lifespan Respite Program can play a key role in state efforts to reform LTSS? What opportunities and initiatives hold the greatest likelihood for success in your state?
3. Thinking about the Lifespan Respite Program and how it has grown and evolved over the past five years, what would you like to see of the program next year? Three years from now?
Strategic Planning for Lifespan Respite: Why is it important and how is it done?
March 19, 2013
Pat Luchkowsky from the Ohio Respite Coalition and Jane Byrnes from the Ohio Department of Aging shared information on why they decided to undertake a strategic plan for their Lifespan Respite project, the process they engaged in to develop it, the skills needed to make it a successful process resulting in a useful document, and updates on successful implementation. To view their Strategic Plan, click here.
For a recording of the call, click here.
Please provide your feedback to this teleconference by completing this quick online survey.
Planning for Lifespan Respite Grant Activities: Beyond the First Three Years
January 30, 2013
Greg Link with the Administration for Community Living/Administration on Aging provided background on last year's Lifespan Respite Integration and Sustainability grant program. Recipients of these 2012 grants shared information about their planned activities and progress to date. State presenters were:
For a recording of the call, click here.
Please provide your feedback to this teleconference by completing this quick online survey.