Lifespan Respite
Technical Assistance Center

Needs Assessments, Caregiver and Provider Surveys, and Additional Resources


Alabama Lifespan Respite Network (ALRN) provided sample letters, family caregiver and provider surveys, and the results. The survey was designed and conducted by the University of Alabama at Birmingham in collaboration with ALRN:

For PPT presentation by Dr. Brian Geiger and Dr. Marcia O'Neal on needs assessment, see "Resources" below.

Determining Provider Needs for Respite Training, Results of an Alabama Survey, Brian F. Geiger, Marcia R. O’Neal, December 21, 2014


Arkansas 2022 Caregiver Survey Instrument

2022 Arkansas Caregiver Feedback Preliminary Data Report


Becker, Lisa; Tracy Mann, MA, and Tim Brooks, EdD. (2007) Respite Care in Delaware: The Delaware Lifespan Respite Information Network, Report to the Governor's Commission on Community-Based Alternatives for Individuals with Disabilities. The University of Delaware Center for Disabilities Studies in partnership with the Delaware Caregivers Support Coalition. Several organizations in Delaware, including the Delaware Caregivers Support Coalition, the Delaware chapter of the American Association of Retired Persons (AARP), and the Center for Disabilities Studies at the University of Delaware, examined the issue of respite care services over a three-year period.  Each of these organizations conducted policy analysis and surveys of families. All organizations found that, while there are some good sources of respite support in the state, there was a need for expanded respite services, a centralized database, and a way to link respite providers to caregivers in need of services.  The report summarizes these findings. Click here

Caregiver Survey (2004) 

Provider Survey (2004)


Colorado Respite Provider Survey, 2012 

District of Columbia

Respite Provider Survey, 2011 


Idaho Caregiver Needs and Respite Capacity Report, 2014 and Executive Summary


2009 Kansas Lifespan Respite Survey

2009 Kansas State Lifespan Respite Survey, Statement 


Understanding Caregiver Needs in Maryland: Summary of Key Findings: Caregiver Survey Maryland 2015


Family Caregiver Respite Service Needs Questionnaire

2014 Results of Environmental Scan and Needs Assessment


Final Report: Caregiver Support Service Assessment  (metro area)

Caregiver Support Assessment Survey  (metro area)

2013 Statewide Survey of Providers that offer Caregiver Support Services (pdf) 


Caregiver Survey Results Summary 

Provider Survey 

Caregiver Survey  


In August, 2017, the Respite Across the Lifespan program at the University of Nebraska Medical Center at the Munroe Meyer Institute (UNMC-MMI) was awarded funding from the NE Planning Council on Developmental Disabilities to develop a “Respite Evaluation Task Force.” The Task Force's main purpose was to investigate reasons for the underutilization of the NE Lifespan Respite subsidy and make recommendations and possible strategies to address identified concerns. The Task Force also addressed the challenges of finding respite care providers for individuals who have behavioral challenges. Final Report.


Nevada Lifespan Respite Care Program Data on Caregivers 2012, Final Report 

New Hampshire

2011 Needs Assessment of Family Caregivers 

Family Caregiver Survey 

Results of Lifespan Respite Caregiver Survey 

New York



Lifespan Respite Grant Caregiver Needs and Provider Survey Report

South Carolina

South Carolina Respite Coalition Caregiver Survey, August 2020 - Key Findings


Caregiver Characteristics Associated with Use of Respite Care: Results from a Texas 2012 Statewide Survey, Alison Little and Kristin Christensen, PPT Slides from National Lifespan Respite Conference

Survey Instrument: Caregiver Survey


The Respite Care Association of Wisconsin is a member of the Wisconsin Family and Caregiver Support Alliance. The Alliance recently released the results of a family caregiver survey on how caregivers find and utilize resources, including respite, and barriers to service use. Results are presented for caregivers of children and young adults under age 30 and caregivers of adults age 30 and older.

Additional Resources

Designing and Implementing a Needs Assessment . Brian F. Geiger, EdD, FAAHE & Marcia R. O'Neal, PhD, University of Alabama at Birmingham, School of Education, College of Arts and Sciences and Center for Educational Accountability.


Both of the following resources apply more directly to an individual respite program, but many of the same principles can be applied to a statewide needs assessment:

ARCH Fact Sheet #27. Sticky Figures: Using a Needs Assessment (Sept. 1993)

A thorough examination of the process of developing, implementing, and documenting a needs assessment. Various data collecting methods are examined in detail. Written by David B. Langmeyer, evaluation consultant. 

Bringing Respite to Your Community: A Start-up Manual. 

These manuals give step-by-step instructions on how to begin a respite care program. The 332-page book includes chapters on needs assessment, the planning process, program models, budget, collaboration, marketing, funding, administrative policies and procedures, staffing, daily operations, and evaluation. Included are sample forms, policies, job descriptions, and other resources that can help existing programs reevaluate the design of their current services.   

Lifespan Respite

Technical Assistance and Resource Center

ARCH National Respite Network and Resource Center

(703) 256-2084 |

This project is supported, in part by grant number 90LT0001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.


The ARCH National Respite Network and Resource Center is a program of Families and Communities Rising |4220 NC Hwy 55, Suite 330, Durham, NC 27713 |



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