Lifespan Respite
Technical Assistance Center

Sustainability Learning Collaborative

Selected Sustainability Planning Resources, click here

Sustainability Planning LC Workgroup Calls, click here

Learning Collaborative Meetings and Webinars 

The learning collaborative now holds monthly sustainability planning work group calls on the fourth Friday of every month at 12 PM. Please contact Susan Janko Summers for more information. For recordings of past meetings and group resources, visit the Sustainability Planning Learning Collaborative Workgroup

November 12, 2019

This meeting was opened to the Lifespan Respite Network. The archived webinar and resources can be found here.

State Respite Legislation - Advancing Respite for Family Caregivers


Jon Bartholomew, Senior Legislative Representative, AARP, Portland, OR

Kathy Mayfield-Smith, President and Co-Founder, South Carolina Respite Coalition

State Lifespan Respite grantees and their state coalition partners are exploring strategies to help sustain activities to expand and enhance respite resources and options for family caregivers, to increase capacity for providing respite services through respite provider training and recruitment and to improve access to and quality of available services. While state lifespan respite grantees may not use their federal funds to promote state legislation, their partners are exploring state legislative opportunities that help families pay for respite or build new respite services.

This webinar focused on state legislative respite initiatives sponsored by AARP across the country, including a successful legislative initiative in Oregon, as well as examples of state legislative successes shared by a state respite coalition.

PPT Slides

State Respite Legislation

March 6, 2019

This meeting was opened to the Lifespan Respite Network. The archived webinar and resources can be found here.

Putting a dollar sign to it: The FRIENDS Cost Analysis Template Adapted for Respite

Presentation by 

Casandra Firman, Senior ARCH Staff and T/TA Coordinator, FRIENDS National Resource Center for Community-Based Child Abuse Prevention

MaryJo Caruso, T/TA Coordinator, FRIENDS National Resource Center and PA Alliance for Respite Care

This webinar explores why and how we conduct cost analysis. It will provide attendees with a simple, electronic tool designed to calculate the exact cost of providing respite. The presenters will demonstrate how to use the Respite Cost Analysis Template and will discuss how the template can be adapted for tracking the costs of other program activities, including Lifespan Respite grant or State Respite Coalition activities. The presenters will also describe the importance of cost analysis to developing a long-term sustainability plan.

Costing Template for Respite

Additional Resources

January 23, 2019

This meeting was opened to the Lifespan Respite Network. The archived webinar and resources can be found here

Building Pathways to Sustainability: Business Acumen Resources from the Aging and Disability Business Institute

Presentation by Marisa Scala-Foley, Director, Aging and Disability Business Institute at the National Association for Area Agencies on Aging (n4a)

As health care providers and payers increasingly recognize the importance of social and behavioral determinants of health for their members/patients and their caregivers, they are increasingly partnering with community-based organizations (CBOs) to provide services to address these issues. This webinar will talk about opportunities for partnering and contracting that can support your lifespan respite program, as well as trends that we’re seeing in contracting between health care entities and CBOs. We’ll also discuss some of the building blocks for thinking about how to build pathways to sustainability for your program.

Resources on Medicaid Managed Care for LTSS, Medicare Advantage Plans and Business Acumen. 

August 16, 2018

Recorded Call


Using a SWOT for Strategic Planning and Measuring Outcomes

Presentation by Julie Waters with the Alabama Department of Senior Services, and AL’s Lifespan Respite grantee manager.

SWOT analysis is a strategic planning method used to research external and internal factors that affect an organization’s success and growth. The Alabama Department of Senior Services and the Alabama Lifespan Respite Network have been utilizing the SWOT Analysis as an ongoing process to look at where they have been and to plan going forward. The SWOT makes strategic planning easy and with little skill set, anyone can facilitate the process. The model is easy and looks at Strengths, Weaknesses, Opportunities and Threats. These four areas will show you how to analyze where you are now, where you want to be, and then help you to make an action plan to get there. This call focused on how this process can make a big difference in your development, sustainability and ongoing planning for all services to help caregivers including, but not limited to, expansion of respite awareness and services.

February 8, 2018

On this call, Melissa Terry and Cheryl Smith from the Alabama Lifespan Respite Resource Network continued the conversation begun during the last call by talking about their experiences and challenges related to planning for sustainability, and how their planning efforts have been realized over time.

Growing a State Respite Program from the Ground Up!

Presentation of Melissa Terry and Cheryl Smith from Alabama Lifespan Respite

In 1996, United Cerebral Palsy of Huntsville realized there were limited respite options for Alabama caregivers and successfully pursued a 3-year grant in 2000 to address the availability and accessibility of respite in our state. UCP staff pulled together a 36-person task force comprised of stakeholders across multiple state agencies, caregivers and other key stakeholders to create a statewide strategic plan. Alabama Respite was born out of this task force and is now legislatively mandated as the main coordination point for all respite initiatives in Alabama. Through relationship building and advocacy, Alabama Respite has obtained annual funding in the state budget and contracts with several state agencies. Presenters will discuss how Alabama Respite has built relationships to assure sustained funding and growth in the program in a way that other programs can replicate.

December 11, 2017

Focus on top burning issues and markers of sustainability identified at in-person meeting in Huntsville.

Top issues discussed: Funding and Stakeholders/Coalitions  

At the meeting in Huntsville in October, 2017, the group identified burning issues. During this call, the learning collaborative explored the top two topics from this burning issues list –– Funding and Stakeholders/Coalitions and Planning Groups.  

Kathy Mayfield Smith with the SC Respite Coalition shared SC’s experiences in leveraging resources –– how they accomplished this in South Carolina, who was involved, and how they were involved.  She spokne about how their coalition built an infrastructure that allowed them to quickly capitalize on an extraordinary funding opportunity that added 2.4 million dollars in recurring funding for respite vouchers, and $100,000 for respite administration. Kathy stressed the need for coalitions to have a goal in mind, plan and prepare for that goal, and look for new opportunities to reach it. She pointed out the importance of knowing who is in your state legislature, and knowing about them––their interests and personal experience related to respite. She also spoke about the importance coalition members playing active roles––such as supporting a network of advocates and consumers to effectively educate others about the importance of respite. 

Doris Green, with the New York State Caregiving and Respite Coalition and Jean Sherman with the Florida Lifespan Respite Alliance also presented case studies about current sustainability planning efforts in their respective states, including progress and challenges. 

October 11, 2017

Collaborative met in person at the Lifespan Respite grantee and partner Learning Symposium in Huntsville, AL, and brainstormed issues and challenges.

June 8, 2017 

Webinar: Background on Using the Finance Project Sustainability Tools. Presented by Learning Collaborative Leaders

State Case Study Presentations

  • NEBRASKA, Sharon Johnson, Nebraska Lifespan Respite Network
  • PENNSYLVANIA, MaryJo Alimena Caruso, Pennsylvania Respite Coalition
  • MASSACHUSETTS, Amy Nazaire, MA Lifespan Respite Coalition

April 21, 2017 - Introductory Call of the Collaborative

Lifespan Respite

Technical Assistance and Resource Center

ARCH National Respite Network and Resource Center

(703) 256-2084 |

This project is supported, in part by grant number 90LT0001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.


The ARCH National Respite Network and Resource Center is a program of Families and Communities Rising |4220 NC Hwy 55, Suite 330, Durham, NC 27713 |



Powered by Wild Apricot Membership Software