Lifespan Respite
Technical Assistance Center

ARCH/ACL Data Work Group (2017-18)

National Data Collection Work Group Members

Aim of the Work Group

In collaboration with ARCH and the Lifespan Respite Grantees and Partners, the Administration for Community Living (ACL) has convened a National Lifespan Respite Data Collection Work Group. The aim of the work group is to identify and test a method for collecting performance data on the impact of the Lifespan Respite Care Program.


The work group will build upon the prior work of ARCH, including the information in Measuring Systems Change and Consumer Outcomes Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. At the Lifespan Respite Grantee and Partner Learning Symposium in Huntsville in October 2017, Heather Menne, with ACL, provided a brief overview of ACL’s proposed timeline and activities for the work group that was followed by a discussion among grantees and partners about key data elements and key factors for ACL to consider. You can view videos of Heather Menne’s presentation and the group discussion that followed.

During the Learning Symposium, attendees shared their thoughts on:

  • The key factors that ACL staff should to keep in mind as they work with ARCH and the LRP grantees to develop a tool for measuring performance outcomes.

Work Group Process

As with the initial ARCH work in determining suggested performance metrics for Lifespan Respite grantees, ACL, ARCH, and Lifespan Respite Care Grantees and Partners will work together to design a tool for collecting this data.

Through a series of discussion calls, the Workgroup will identify the most suitable system change outcomes and tools for data collection that will be drafted by ARCH, and then a group of voluntary Grantees will test a potential data collection tool. ACL will then seek approval from the Office of Management & Budget (in alignment with the Paperwork Reduction Act) in order to include necessary performance measures in future FOAs.

Lifespan Respite

Technical Assistance Center

ARCH National Respite Network and Resource Center

4016 Oxford Street

Annandale, VA 22003

(703) 256-2084

This project is supported, in part by grant number 90LT0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.


The ARCH National Respite Network and Resource Center is a division of the Chapel Hill Training-Outreach Project, Inc. | 800 Eastowne Drive, Chapel Hill, NC, 27514 |



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